One-year-old with rare 'uncombable hair syndrome' - Daily Mail
Dec 02, 2021 1 min, 23 secs

A mother has revealed how her baby is one of around just 100 people in the world diagnosed with the ultra 'rare uncombable hair syndrome' - but she is teaching him how to be proud of his unruly locks.

The genetic condition is a very rare one with only just 100 people in the world diagnosed.

Then during the summer, a stranger messaged Katelyn to ask if he had something called uncombable hair syndrome.

Katelyn had never heard of the rare condition, which causes a rare structural anomaly of the hair meaning it can't be brushed or flattened down, no matter how hard you try.

'They took samples of his hair and called us a few weeks later and confirmed it was in fact, Uncombable Hair Syndrome.

Uncombable hair syndrome is a rare inherited disorder that causes locks to stand up from the roots and not be flattened.

Such hair is usually silvery-blond or straw colored.

The hair usually appears between three and 12 months of age!

The syndrome usually resolves or improves at the onset of puberty.

Although UHS usually only affects the hair, Katelyn was still concerned about the diagnosis.

She said: 'Hearing your son has a genetic condition isn't easy, especially because it's so rare there isn't a lot of information on it.

The baby boy with the cool hair: Locklan's parents didn't know what to expect when their son's hair was growing

The silvery-blond or straw colored hair usually appears between three and 12 months of age

Katelyn said: 'We set up his IG account because people truly are so intrigued by his hair and love it so much we wanted to raise awareness of such a rare genetic disease

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